רשימת מקורות 1. Ruperto N, Ravelli A, Murray KJ, Lovell DJ, Andersson-Gare B, Feldman BM, Garay S, Kuis W, Machado C, Pachman L, Prieur AM, Rider LG, Silverman E, Tsitsami E, Woo P, Giannini EH, Martini A for the Paediatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). Preliminary core sets of measures for disease activity and damage assessment in juvenile systemic lupus erythematosus and juvenile dermatomyositis. Rheumatology 2003; 42: 1452-1459. 2. Ruperto N, Ravelli A, Cuttica R, Espada G, Ozen S, Porras O, Sztajnbok F, Falcini F, Kasapcopur O, Venning H, Bica B, Merino R, Coto V, Ros J, Susic G, Gamir ML, Minden K, See Y, Uziel Y, Mukamel M, Riley P, Zulian F, Olivieri AN, Cimaz R, Girschick H, Rumba I, Cavuto S, Pistorio A, Lovell DJ, Martini A, for the Pædiatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The PRINTO criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus. Prospective validation of the core set. Arthritis Rheum. 2005;52:2854-2864. 3. Ruperto N, Ravelli A, Oliveira S, Alessio M, Mihaylova D, Pasic S, Cortis E, Apaz M, Burgos-Vargas R, Kanakoudi-Tsakalidou F, Norambuena X, Corona F, Gerloni V, Hagelberg S, Aggarwal A, Dolezalova P, Magalhaes Saad C, Bae SC, Vesely R, Avcin T, Foster H, Duarte C, Herlin T, Horneff G, Lepore L, Van Rossum M, Trail L, Pistorio A, Andersson-Gäre B, Giannini EH, Martini A, for the Pædiatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The Pediatric Rheumatology International Trials Organization/American College of Rheumatology provisional criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus. Prospective validation of the definition of improvement. Arthritis Rheum. 2006; 55:355-363. 4. Uziel Y, Gordonitski N, Mukamel M, Padeh S, Brik R, Barash J, Mevorach D, Berkum Y, Tauber Z, Press J, Harel L, Navon P, Rubinstein M, Hashkes PJ. Outcome of a national Israeli cohort of pediatric systemic lupus erythemathosus. Lupus 2007; 16:142-6. 5. Raul Gutiérrez-Suárez, Nicolino Ruperto, Roberto Gastaldi, Angela Pistorio, Enrico Felici, Ruben Burgos-Vargas, Alberto Martini, and Angelo Ravelli, for the Pediatric Rheumatology International Trials Organization (PRINTO) A Proposal for a Pediatric Version of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index Based on the Analysis of 1,015 Patients With Juvenile-Onset Systemic Lupus Erythematosus. Arthritis Rheum. 2006; 54 : 2989-2996. 6. Ruperto N, Ravelli A, Pistorio A, Ferriani V, Calvo I, Ganser G, Brunner J, Dannecker G,Silva CA, Stanevicha V, Ten Cate R, Van Suijlekom-Smit LWA, Voygioyka O, Fischbach M, Foeldvari I, Hilario MO, Modesto C, Saurenmann RK, Sauvain MJ, Scheibel I, Sommelet D, Tambic-Bukovac L, Barcellona R, Brik R, Ehl S, Jovanovic M, Rovensky J, Bagnasco F, Lovell DJ, Martini A, for the Pediatric Rheumatology International Trials Organisation (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The Provisional Pediatric Rheumatology International Trial Organization/American College of Rheumatology Disease Activity Core Set for the evaluation of response to therapy in Juvenile Dermatomyositis: A Prospective validation study. Arthritis Rheum. 2008; 59:4-13. 7. Zulian F, Vallongo C, Woo P, Russo R, Ruperto N, Harper J, Espada G, Corona F, Mukamel M, Vesely R, Musiej-Nowakowska E, Chaitow J, Ros J, Apaz MT, Gerloni V, Mazur-Zielinska H, Nielsen S, Ullman S, Horneff G, Wouters C. Localized scleroderma in childhood is not just a skin disease. Arthritis Rheum. 2005; 52:2873-81. 8. Zulian F, Athreya BH, Laxer R, Nelson AM, Feitosa de Oliveira SK, Punaro MG, Cuttica R, Higgins GC, Van Suijlekom-Smit LW, Moore TL, Lindsley C, Garcia-Consuegra J, Esteves Hilario MO, Lepore L, Silva CA, Machado C, Garay SM, Uziel Y, Martini G, Foeldvari I, Peserico A, Woo P, Harper J. Juvenile Localized Scleroderma: clinical and epidemiological features in 750 children. An international study. Rheumatology 2006; 45:614-20. 9. Zulian F, Woo P, Athreya BH, Laxer RM, Medsger TA Jr, Lehman TJ, Cerinic MM, Martini G, Ravelli A, Russo R, Cuttica R, de Oliveira SK, Denton CP, Cozzi F, Foeldvari I, Ruperto N. The Pediatric Rheumatology European Society/American College of Rheumatology/European League against Rheumatism provisional classification criteria for juvenile systemic sclerosis. Arthritis Rheum. 2007 15;57:203-12. 10. F Zulian, O Kowal-Bielecka, I Miniati, J Avouac, S Chwiesko, A Aggarwal, BH Athreya, T Avcin, R Cuttica, SKF de Oliveira, G Higgins, RM Laxer, C Lindsley, TH Lehman, G Martini, K Murray, A Ravelli, R Russo, Y Uziel, C Wouters, I Foeldvari and EUSTAR/EULAR committee on SSc management recommendations. Preliminary agreement of the Pediatric Rheumatology European Society (PRES) on the EUSTAR/EULAR recommendations for the management of systemic sclerosis in children (JSSc). PRES annual meeting , Istanbul, September 2007. 11. Dillon MJ, Ozen S. A new international classification of childhood vasculitis. Pediatr Nephrol. 2006; 21:1219-22. 12. Ozen S, Ruperto N, Dillon MJ, Bagga A, Barron K, Davin JC, Kawasaki T, Lindsley C, Petty RE, Prieur AM, Ravelli A, Woo P. EULAR/PReS endorsed consensus criteria for the classification of childhood vasculitides. Ann Rheum Dis. 2006;65:936-41. 13. F Falcini, L Ricci, A Pistorio, F Zullian, GB Calabri, A Vitale, R Cuttica, S Olivieira, MC Pietrogrande, U Unsal, S Ozen, S Magni Manzoni, L Lepore, R Barcellona, F De Benedictis, S Martino, E Stenboeg, S Pasic, A Boncompagni, A Siamopolou-Mavridou, Y Uziel, D Rigante, F Dressler, J Walsh, T love. Proposal for diagnostic guidelines for incomplete and atypical Kawasaki disease. PRES annual meeting, Istanbul, September 2007. ACR annual meeting , Boston, November 2007 Abstract in Arthritis Rheumatol 2007; 53:9 supp,S 372, 20. 14. Hashkes PJ, Uziel Y, Rubenstein M, Navon P, Padeh S, Mukamel M, Brik R, Press J, Tauber T, Harel L, Berkun Y, Barash J. The Israeli internet - based registry: Novel concept of multicenter data collection in pediatric rheumatology experience. PROJ 2004; 2:37-50. 15. Hashkes P, Uziel Y, Press J, Brik R, Navon-Elkan P, Mukamel M, Libman E, Tauber T, Ruperto N, Barash J, for the Paediatric Rheumatology International Trials Organisation (PRINTO): The Hebrew version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001; 19 (Suppl. 23): S86-90. |